Register interest

If you live in the UK, have been diagnosed with MND and are interested in taking part in MND-SMART, this is where you can register your interest.

We’ll use the information you provide to find your nearest MND-SMART trial centre(s) and will pass your information to the centre(s) so they can contact you about taking part in the study when they open.

On the Trial Centres page of our website you can find out which centres are now open and where we plan to open other centres. Go to the Trial Centres page.

Please see our full privacy statement below.

Privacy statement

The information you provide will be used by the University of Edinburgh to communicate with you about taking part in MND-SMART. We’re storing your personal details because you have given us your explicit consent.

We’ll hold the personal data you provide for up to five years. It will be stored securely and will only be accessed by University of Edinburgh staff and MND-SMART trial personnel. If you decide you don’t want to take part in the trial and don’t want to be contacted by us again, please contact us and we will delete your personal data.

We’ll only share your personal data with your nearest MND-SMART trial centre(s).
We’ll not share your data with any other third party.

If you have any questions, please contact us on

This privacy statement is continued on the University of Edinburgh website at: Continued privacy statement